September Prostate Patient Group Meeting

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Prostate Cancer Patients Meeting on Thursday the 23rd 1:00 PM

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Author Hal Howland one of our ProtonPals Wins Award

Howland book wins award, gets second edition

SeaStory Press has published a revised second edition of Hal Howland’s acclaimed novel Landini Cadence. The book is a finalist in the 2011 Next Generation Indie Book Awards, presented on May 24 at the Plaza Hotel in New York.

Landini Cadence and Other Stories: A Rich Castillo Threesome combines the comic tale of roadside sex, murder, and dysfunctional family values with two others featuring cranky Key West detective-musician Rich Castillo: the outrageous Brice Miller’s Notebooks, which eavesdrops on a respected Irish novelist trying her hand at erotica, and the short satire “Murder in the Percussion Section,” in which someone is going around the country killing successful drummers, using vintage percussion accessories as weapons. The 406-page book is available in a handsome paperback priced at $18 or as an e-book priced at $6.99.

Hal Howland is the author of After Jerusalem: A Story and Two Novellas and The Human Drummer: Thoughts on the Life Percussive. He is the recipient of a jazz fellowship from the National Endowment for the Arts. Born in Washington, D.C., and raised in Virginia, Europe, and the Middle East, Howland lives on Sugarloaf Key, Florida. His Web site address is www.halhowland.com.

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Hal was one of my classmates in 2007 and has published two or three novels since his 2 month stay in Houston. 

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Monthly Prostate Cancer Patients Meeting

Mark your calendar for Dr. Choi’s presentation on Thursday June 23, 2011 at 1:00 pm , at PTC1.1124 & PTC1.1128. Want to meet up for lunch before going to this session let me know,  jelandry@sbcglobal.net

“Proton Therapy for Prostate Cancer Monthly Meeting

Q&A with Dr. Choi”
Seungtaek Choi, MD
Assistance Professor
Radiation Oncology

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New M.D. Anderson President

DePinho Formally Named Next MD Anderson President

By Cancerwise Blogger on June 9, 2011 2:47 PM | Comments (0)

DePinho_Town_Hall1_edit.jpgRonald A. DePinho, M.D., was formally named the next president of MD Anderson today by The University of Texas System Board of Regents. He will begin his duties on Sept. 1.
“Dr. DePinho’s talents and experience make him an ideal choice to lead UT MD Anderson,” says UT System Chancellor Francisco G. Cigarroa, M.D. “It is because he has such deep understanding of the impact of cancer research at the patient’s bedside — and of the complexities of cancer care — that he is so well suited to the responsibilities of leading the nation’s, and in my opinion the world’s, most revered cancer center.”
A genetics researcher, DePinho is director of the Belfer Institute for Applied Cancer Science at the Dana-Farber Cancer Institute in Boston. He was chosen as the sole finalist on May 11, but Texas law required a waiting period before the final vote could be taken.

“It is with great pride that I have accepted this solemn responsibility as it is my belief that MD Anderson — armed with its scientific and clinical brilliance, determined spirit and singular focus on cancer — is supremely positioned to make major progress in the prevention, detection and treatment of this disease,” DePinho says.

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Free PSA Screening this Saturday, Tomorrow at most of the Houston SAMS Clubs.

This Saturday, Tomorrow  at most of the Houston SAMS clubs there will be free PSA screening.
The screenings, conducted by Carmen Ingle & Associates, will include a Prostate-Specific Antigen (PSA) test and a thyroid-stimulating hormone (TSH) test*. These tests, which help detect life threatening health conditions such as prostate cancer, are usually only offered to men 50 and over and often cost more than $200. Proactive screening tests can help find diseases early, sometimes before symptoms develop, when treatments are most effective.
Locations include:

Houston(Westpark) Sam’s Club

5310 S Rice Ave
Houston(Westpark), TX 77081
Distance: 7 Miles Get Directions
Saturday, June 04, 2011
11am – 3pm
PSA/TSH Blood Pressure/BMI

Houston(Mem) Sam’s Club

10488 Katy Fwy
Houston(Mem), TX 77043
Distance: 12 Miles Get Directions
Saturday, June 04, 2011
11am – 3pm
PSA/TSH Blood Pressure/BMI

Houston Sam’s Club

7950 Fm 1960 Rd W
Houston, TX 77070
Distance: 18 Miles Get Directions
Saturday, June 04, 2011
11am – 3pm
PSA/TSH Blood Pressure/BMI

Friendswood Sam’s Club

155 W El Dorado Blvd
Friendswood, TX 77546
Distance: 19 Miles Get Directions
Saturday, June 04, 2011
11am – 3pm
PSA/TSH Blood Pressure/BMI

Sugar Land Sam’s Club

351 Highway # 6
Sugar Land, TX 77478
Distance: 20 Miles Get Directions
Saturday, June 04, 2011
11am – 3pm
PSA/TSH Blood Pressure/BMI

Katy Sam’s Club

20424 Katy Fwy
Katy, TX 77449
Distance: 22 Miles Get Directions
Saturday, June 04, 2011
11am – 3pm
PSA/TSH Blood Pressure/BMI

Shenandoah Sam’s Club

19091 Interstate 45 S
Shenandoah, TX 77385
Distance: 29 Miles Get Directions
Saturday, June 04, 2011
11am

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Once a Marine Always a Marine

A RETRACTION: In the April newsletter I slipped up and called one of our Pals an ex-Marine. I was corrected, rather promptly by a Vietnam veteran who wrote, that “once a Marine, always a Marine.” You maybe on inactive duty but you’re still a Marine. For this I apologize.

Also want to correct one of the links in the newsletter, that the link to Our Stories was not correct. As you read this you can navigate over to the tab, Our Stories and select the tabl and it will list the stories of Pals who have written in.

Several have sent their status and hope to see you when you come in for a follow up visit to Houston.

Joe Landry

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Become Your Own Advocate

“You Can Beat Prostate Cancer… And You Don’t Need Surgery to Do it” with permission of the author, Robert J. Marckini, copyright 2006 

     This is perhaps the most important message of this book. You
need to take charge of your own treatment decision. No single
treatment is best for everybody. In the case of prostate cancer, you
have several treatment alternatives, and there is only one person on
this planet who is qualified to choose the option that is best for you.
You! But you need to do your homework first, so that you are
comfortable with your decision.
      Most of us were brought up to believe the doctor knows best. One
of the most common questions a prostate cancer patient asks his
doctor is “What would you do if you were me, doctor?” And the
doctor will tell you. But what you need to realize is that doctors in
different specialties will often give you different answers to that
question. Let me repeat this very important point:

Doctors in different specialties will often give you different
answers to the question, “What would you do doc?” And most
are biased to their specialty.

       In the course of my interviews of hundreds of prostate cancer patients,
the vast majority of them reported that when they met with their
urologist, who is fundamentally a surgeon, surgery was
recommended. The radiation oncologist typically recommended
radiation. Those who met with doctors specializing in brachytherapy
were generally encouraged to do seed implants. Cryo-surgeons
recommended freezing, and so on. How can surgery, external beam
radiation, seeds and liquid nitrogen all be best for the same patient?
They can’t.
       Does this mean that doctors are intentionally misleading their
patients for their own personal gain? No. Most doctors will act in
terms of what they believe is in the best interest of their patients.
Sadly, many doctors are not knowledgeable about some of the
developing technologies. Therefore it is up to you, the patient, to do
your own homework, and make the treatment decision that is best for
you.
      I happened to choose proton beam therapy (a form of external
beam radiation) for my treatment. My own urologist, who is chief of
urology for a major hospital in the Northeast, admitted lack of knowledge
of proton beam treatment and encouraged me to have
surgery. Why? Because he was very experienced, he had done
several hundred surgeries, he believed that considering my age,
physical condition, PSA, and Gleason score, surgery offered me the
best chance for a cure.
      The radiation oncologist, said, “Considering your age, cancer
stage, and general health, I recommend Conformal External Beam
Radiation Therapy.”
      The brachytherapist felt similarly about his specialty. He told
me that I was “the poster boy for brachytherapy.” Why? Because of
my relatively young age, good health, non-enlarged prostate, early
stage cancer, and his experience and expertise at his specialty.
       The doctor I spoke with about cryosurgery felt the same way.
If he were in my shoes he would choose to freeze the prostate.
How could each of these treatment options be best for me? I
knew they couldn’t. They might all have worked, but what about such
issues as impotence, incontinence, fatigue, pain, convenience, cost,
treatment time, recuperation time, and other factors that were
important to me?
      I quickly learned one of the most important lessons of this
journey: The only way I can know for sure what is best for me is to
jump in with both feet, learn everything I can about each option and
then make my own decision. I did this, and my ultimate decision
surprised everyone – especially me.
      When I was first diagnosed with prostate cancer and did my
preliminary research, proton beam therapy wasn’t even on my radar
screen. I didn’t know it existed. I now head up an international
support group for men who have chosen PBT. I therefore admit a
built-in prejudice toward this option. But I do not think it is for
everybody. And I truly believe that by reading and understanding
what is presented in this book, you too will make the decision that is
best for you.

 

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Rx for Marriage

  

By Dwan Reed   Dwan Reed’s Blog and Professional Web Site

I circled the carousel of self-help books. Improve your marriage…better health… become closer to God… Each looked interesting. “Should I choose one?” I wondered. “Who am I kidding? I need them all.”

I waved at Olive, my elderly friend, at the back of the grocery line and smiled, amazed at how fast she shopped. I had only been waiting twenty minutes.

Just then my phone rang. I trembled when my husband’s number flashed on the screen, took a deep breath and answered. “Did your results come in?”

He sighed, “Yes, and you’re not going to believe this.”

I waited for the good news. Thomas’s doctor, who obviously didn’t know how well my husband took care of himself, had referred him to an urologist for cancer screening. “Dwan, I have prostate cancer.”

I pulled the phone away from my ear and glared at it. Surely I was imagining this conversation. Thomas wasn’t really on the other end of the line. Yes, that’s it. Maybe one of those self-help titles took up residence in my mind. But the telltale number blinking on my cell’s screen told me otherwise. I pulled the phone back to my ear. “Did you just say what I thought you said? Are you sure the doctor was reading from your chart?”

“I’m sure, Dwan. And it’s not a slow growing cancer; it’s aggressive. The doctor wants to begin treatment right away. He says I don’t have much time to play around with this.

“Thomas, I don’t understand. How does a healthy forty-nine-year-old man have prostate cancer?”

“I don’t know, but I’ve got it.”

“This makes no sense. Shouldn’t there have been more warning signs?”

I don’t remember what Thomas said after that. My mind drifted, searching for “normal,” our way of life before this devastating diagnosis. I watched grocery items slide their way slowly down conveyer belts. Smiling clerks greeted customers, and baggers loaded plastic sacks and placed them in carts. I noticed another woman surveying the same carousel of books I had just circled. “I wouldn’t read those if I were you, “ I mentally challenged her. “You may receive a phone call with unexpected news.”

And “normal” was nowhere to be found.

One phone conversation, and fear had barged into my world, trampling the carefree expectancy of long life. Suddenly, I felt like a very old forty-one-year-old woman who had gained an undesirable understanding of, “tomorrow isn’t promised to any of us.”

I dropped off my friend, Olive, at the senior center and headed home thinking about the blessings I had always taken for granted. In spite of my husband’s spirituality, strength, and hard-working nature, I sometimes joked that I was trapped in a “ground hog day” of a marriage, complete with the repeat of humdrum every twenty-four hours.

My heart ached as I yearned for another eighteen years. I wondered, “What made me think it would last forever?”

Grasping the steering wheel with one hand and wiping back tears with the other, I petitioned God. “Lord, I love this man, but I know I don’t always act like it. What a fool I’ve been.” And as I pulled into our driveway, I continued, “God, Thomas is one of the best husbands and fathers in the world. Please forgive me for not being a better wife. What do I do now, Lord? Please save him.”

I slowly opened the front door, hoping my husband would meet me and announce, “The doctor called and it’s all a mistake. He confused my test results with someone else’s.” Instead, he pulled me to his chest and whispered, “Dwan, I love you… I don’t know what to say.“ As Thomas leaned down burying his head in my neck, I knew we couldn’t escape the reality of this illness that had invaded his body—and our marriage.

The coming months were difficult. We searched for a doctor who would address the lifestyle issues of a young man with an older man’s disease. With each serving of bad news, we cried and held one another, uncertain if we would be able to make love again the same way, uncertain whether my husband would have permanent incontinence issues, or worse.

Faced with the brevity of health, I wasn’t ready to let go. I longed for the simplicity of what I assumed would always be, yet helplessly yielded to a different course for our future.

For weeks, we awaited Thomas’s test results to determine if the cancer had spread. The ever-present malignancy in our lives began to melt my fierce independence and Thomas’s façade of indifference. As layers of buried emotions surfaced, I realized we’d lived together without truly knowing one another. I discovered that my husband was kinder, more loving, and enjoyable than I had ever imagined. And I hoped he discovered the same things in me.

The results came back. The cancer appeared to be contained in the prostate. The next step was to decide upon a course of treatment—surgery, radiation, proton therapy, naturopathic medicine, etc. Each therapy presented its own unique ramifications. For four months, we prayerfully studied each option and finally elected proton therapy and hormonal treatment.

Thomas took a two-month leave from work and rose before dawn each morning to drive across town for therapy. Day-by-day, his energy diminished while his slender frame surged to stocky proportions. I witnessed my well-tempered, reserved husband become emotional, reflective, and at times, irritable. A reluctant onlooker, I observed the passion in our marriage reduced to a kiss on the cheek as Thomas’s testosterone level dropped to near zero.

Even though Thomas was the one with cancer and undergoing treatment, I realized we were a team—partners in this battle; and I was willing to do anything to ensure my husband would live. To aid in his treatment, I mastered the art of cooking cancer-fighting foods. I took over many of his responsibilities, and learned not to complain when I was tired from carrying his load—and mine. I encouraged him daily, even when I felt uncertain of the future.

In spite of the changes in our marriage, we grew in intimacy beyond the physical. As we connected with each other’s hearts, minds, and souls, our home became a place of peace and hope—a safe house from the troubles of life. The shroud of disease lifted as we learned to laugh amidst trials and savor each new day.

A little over a year after my husband’s diagnosis, Thomas is now cancer-free with minimum side effects—praise God! His illness turned our world upside down, yet brought us closer. I don’t know if our marriage would have ever come alive, if it hadn’t been for prostate cancer. Prescriptions come in all strengths and forms, yet ironically, one of the most ravaging diseases in the world was the prescription we needed for a stronger marriage.

I never want my family to be affected by disease again, but thank God for the blessings that resulted from our journey.

Bio for Dwan Reed

Dwan Reed, Realtor and Broker’s Associate, resides in Houston, TX. She is a professional public speaker, freelance writer, and prison evangelist.  Visit her blog at www.dwanreed.com.

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What Would Legionnaire Dave and Dr. Lee Say

Here’s are “TAKE AWAYS” from the recent interview we had with Legionnaire Dave on of the recent graduates on a long term Lupron program. I emphasize the CONTACT YOUR DOCTOR especially if you’re having an issue and you’re going in to a specialist like a Gastroenterologist for a colonoscopy that may end up with a procedure, or having side effects from Lupron that your family doctor can’t indentify.  As Dr. Lee has repeatedly said, “we’re your doctors for life.” The way I go about getting answers and prompt help for you or other  ProtonPals  who contact me is to write to Dr. Lee or Dr. Choi and with a copy to Nurse Tai Ly. You’ll get a prompt response usually by phone. Read the entire interview here on the ProtonPals website.

What are some “take-aways” you can give us from your experience so far on Lupron?

  1. Because Lupron is a “no-brainer” for me, my focus is on strategies for dealing with its side-effects. I think there are basically two kinds: One is adjusting your attitude (like the ones I’ve been talking about) and the other is to get medication if you need it. I have benefited from both types.
  2. We have the finest doctors anywhere here at MDACC’s Proton Center. CONTACT YOUR DOCTOR WHEN YOU HAVE A PROBLEM. Your doctor is a phone call or email away. Our doctors respond quickly. They care and they are eager to help.
  3. My fellow alums from the PTC are a terrific resource and support group. I’m looking forward to a reunion with them here in Houston next week.
  4. The Proton Pals are also a great support group. We’re starting up a new Lupron Legionnaires discussion board on the Proton Pals website, so that all of us can share our personal experiences and learn from each other.

Lupron Legionnaires Discussion Board

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