ProtonPals

From the land of Grant Wood (American Gothic) and Johnny Carson, Leon Synder wrote to us about his results.  Congratulations and our wish for continued good health.   

Hi Joe,

I went for my first check up on October 1st.  My PSA was .1   My PSA was 5.8 before Proton Radiation.  I was faced with a lot of the same choices that others have mentioned before I decided to come to M.D. Anderson for treatment.  My doctor wanted to do surgery and follow up with regular radiation.  Then, I was offered the “seeds implant” or do nothing for a year.   My wife  then started researching on the Internet and read about Proton Radiation.  I called them several times and decided to come to M.D. Anderson.  I finished treatment on June 1, 2007.  I did have the hormone treatment also along with Proton.  We cannot say enough about Tai Ly.  She encouraged us and helped get everything moving to get me in.  We stopped to see her when I was back in Houston, but she had left that afternoon.

I am feeling good.  I was tired the first couple months when I  came home and started farming again.    I live in Iowa.  It was a commitment to come to Houston for over two months, but it was well worth it.  We met so many wonderful people while we were there.  You can publish my name, address, and e-mail if anyone has any questions.  Thank you.
Leon and Janice Snyder
3643 Karr Avenue
Wall Lake, Iowa 51466

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We received great news from three ProtonPals that I’m including in a starting newsletter.

Wylie P.  copied us on his letter to Dr. Cox, thanking him and his staff for all the support they provide at the center and highlights the center tour.   I recommend that all prospective patients or patients undergoing treatment take the tour.  You’ll get additional insights as to how the treatments plans are developed and you get a look backstage at the 200 ton gantry.  

We have great report from Larry King especially compared to his two friends who were treated via other methods. Larry would like everyone on the list to have his address and phone number. Contact him to chat or refer your friends they want to ask about the treatment.

Julio reports that he continues to attend the support group and has no side effects from the treatment especially in physical activity.  He works out for two hours daily.

See the newsletter attached below.  Proton Pal Newsletter October 23, 2007

In gratitude
Joe Landry
April 2007 Graduate

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I love the idea of the web site for the Proton Therapy people.  I am scheduled to see Dr. Lee on Monday and will probably have my first post treatment PSA test.  I did not seem to have any side effects during/after the treatment and continued playing tennis and working out thoughout my treatment.  Because I chose to have the Hormone treatment in conjunction with the Proton Therepy, I ended up gaining about 10 lbs and am slowly trying to shed them–evidently the 10 pound gain is pretty typical and the effects should start to diminish starting this month and ending sometime in Jan/Feb 2008 according to Dr. Lee.

Glad to hear that you are feeling good and losing weight—good for you!!!!

Brian

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Hi,
Just finished 6 month checkup with PSA at 0.3 and testosterone near the low limit. The latter is bad in some ways but generally safer. Urinary function is essentially normal and there are no apparent side effects. Can’t say enough good things about the treatment so far.
A support group meeting with Dr. Lee (and his ilk) as presenter(s) would really be interesting. Most presenters are expert in some areas but lack a comprehensive view of the technology and biology.
All in all, I have the good fortune to live about 15 minutes away from the proton center.

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I started down this journey when I was diagnosed in November 2006 by a principal Baylor urologist with a recommendation for radical prostatectomy via the Da Vinci robotic surgery.  I was going to schedule this operation in early 2007. In  December at a local fitness center, I met Mike a fellow engineer who I had not seen in 10 years. While catching up, I found out Mike was a prostate cancer survivor and had been treated with Proton Therapy at Loma Linda University. 

Over the Christmas holidays I got an appointment for a consult with the M.D. Anderson Proton Therapy Center in Houston.  Since it was Christmas it took some doing, including using a patient advocate. A very valuable resource. The called from came while attending a Christmas luncheon.  What a gift!

In gratitude

Joe

paljoe

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