ProtonPals

Our ProtonPals web site was featured in web log that I’ve recently found called Rick’s Prostate Cancer Blog.  Rick Otey, on hearing about our web site from his friend Chuck, contacted me about some information about M. D. Anderson.  Chuck started his treatment at the MDACC PTC in early March.

This morning Rick wrote about The First Six Steps to Take When You Are Diagnosed.  What to do when your doctor utters the four words that will forever change your life: “you have prostate cancer.”  But hopefully it won’t be like what I experienced, i.e. when the nurse calls to give you the news but can’t put it in any context, except make an appointment and come in for a consult.  Thanks Rick.

 http://www.ricksprostatecancer.blogspot.com:80/

The author of the note on the six steps is Fuller Jones who presented them in a reply to the wife of a newly diagnosed husband.  Fuller was treated some years back by the Loma Linda Center and owns a Yahoo forum at the link listed below. Check out his site for more information and support.  Thanks Fuller.

http://www.groups.yahoo.com/group/protoninfo.

PalJoe   3/12/2008

Tags: Support, Resources, News by paljoe
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ProtonPals:

Sloane Caskey requested that we forward the notice (Educational Group Meeting) for Feb’s support group meeting featuring Lorianne Classen as the speaker.  Also to remind newcomers and family that these are held on the 4th Wednesday of every month. 

In gratitude,
Joe

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 SOURCE: BOB Tales - Monthly Newsletter to Members - October 2007 Bob Marckini, Editor.

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Dr. Bach in an article in the WSJ notes that the average prostate surgeon in New York State performed fewer that 4 operations a year, 114 who did only one.   ” In other words, even though expertise is needed to deliver an important treatment that should have low complications and high success rates, there is nothing that ensures that men with prostate cancer can have access to such expertise.”

Why We’ll Never Cure Cancer

[Read more →]

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If you are considering radical prostatectomy, an operation to remove the prostate gland, here’s a direct link to a section at WebMD.  Complete, well written but with some sobering statistics about ED and incontinence.

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The Patient Proton   Here’s an excellent 24 page report by Dr. Roy Butler, a chemistry professor from Norwich University and a prostate cancer survivor that is featured on the ProtonBob website.  ProtonBob is Bob Marckini’s web site and Dr. Roy Butler is a well known cancer survivor treated at Loma Linda University Medical Center.  ProtonBob is an essential web site that most if not all of the ProtonPals have used in obtaining information about prostate cancer treatment with proton therapy.  Thanks to Bob and Dr. Roy for making the site and booklet available. 

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